Upcoming Events

Save the Date!

The Arc’s Annual Dinner Dance

Friday, October, 25, 2013

Lombardo’s ~ Randolph, Ma

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Social Security – Disability Programs

 Presented by: Kristen Alberino

Metropolitan Public Affairs Specialist Social Security Administration

 Monday, May 13, 2013

Thayer Public Library

3rd Floor Auditorium

Braintree, Ma

 During our presentation, we will discuss the Different Disability Programs SSA administers.

 How to qualify for benefits and what Social Security offers for online services will also be discussed.

 There will also be a session dedicated to Q&A.

 Please RSVP by May 7, 2013 to Katie Hanley at khanley@arcsouthshore.org or 781.335.3023 ext.2227

Posted in ADDP Updates, Arc of Massachusetts Updates, Arc of the South Shore, Community Supports, Day Habilitation, Events, Featured, First Early Intervention, General, PCA, Special Olympics, Uncategorized | Leave a comment

Duals Family Forum

100,000 adults with disabilities have a decision to make soon.

This change affects all of them.

Are you confused about the Dual Eligible Demonstration?

Co-Hosted by The Arc of the South Shore and The Brockton Area Arc

Presented by Leo Sarkissian, Executive Director of the Arc of Massachusetts

Please RVSP by April 22, 2013 to khanley@arcsouthshore.org or by calling 781-335.3023 ext.2227. The intended participants are families as the location has seating for no more than 70. Providers may send 2 staff per agency but please understand that the primary audience will be family members. 

Location: Abington Public Library

600 Gliniewicz Way

Date: April 29, 2013

Time: 6:00 – 8:00 PM

  • MassHealth has developed a plan that affects adults age 21 – 64 years who are eligible for both Medicare and Medicaid. Instead of the current system, Integrated Care Organizations (ICO’s) will be responsible for providing and financing health care and LTSS (Long Term Support Services) services for its dual eligible members. Examples of ICO’s include Blue Cross and Fallon health insurance companies.

 

  •  If your son or daughter is currently receiving Day Habilitation or Adult Foster Care services they may impacted by this development. You may contact your current provider for verification. There also is a likelihood that the Dual Eligible initiative will continue to expand in the years ahead and we believe you should be aware of its goals and implications.
Posted in Arc of the South Shore, Community Supports, Day Habilitation, Events, Featured, General, Harbor Industries, PCA, Uncategorized | Leave a comment

Save the Dates

Duals Family Forum ~ Abington Public Library ~ April 29, 2013

Social Security Disability Programs ~ Monday, May 13, 2013

The 26th Louis Bailey Golf Outing ~ Cohasset Golf Club ~ June 10, 2013

The Mark Clair Memorial Golf Tournament ~ Franklin Country Club ~ September 30, 2013

The Arc of The South Shore’s Annual Dinner Dance ~ Lombardo’s ~ October 25, 2013

For more information please contact Jennifer Bowman at Jenniferbowman@arcsouthshore.org or at 781-335-3023 Ext 2222.

Posted in Arc of the South Shore, Events, Featured | Leave a comment

‘The Person of the Year’ Award to William G. Burke of Burke Distributing Corporation

On Thursday, March 14, 2013 The Arc of the South Shore presented the first annual, ‘Person of the Year’ Award to William G. Burke, President and CEO of Burke Distributing Corporation.

With almost 400 people in attendance, the event raised over $210,000.00 for The Arc of the South Shore. 

To access the evening’s photo gallery, please click on the below link and enter  marriottquincy as the password.  

http://yankeephotobooth.smugmug.com/Business/2013-03-14ArcoftheSouthShore/28631928_HxM8g2#!i=2428579265&k=g2KpD4h

As you may be aware, The annual ’Person of the Year’ award honors a dedicated citizen for their exceptional effort and contributions within the disabilities community.  It was our pleasure to present the award to Mr. William G. Burke in honor of his long-standing, generous spirit and consistent support of TheArc.

Posted in Arc of the South Shore, Events, Featured, General | Leave a comment

Team Disco at the 59th Annual Dinner Dance

Team Disco at the 59th Annual Dinner Dance – March 19, 2011 led by Katie Hanley

Posted in Event Archives | 1 Comment

As Budget Moves to Senate, Priorities for The Arc, ADDP Remain Underfunded

M. Rasbold-Gabbard - The Arc of Massachusetts posted on May 02, 2011 13:49

With the passage of the state budget in the House of Representatives last week, our community saw positive developments towards restoring services. Noteworthy additions include:

  • Partial restoration of Respite/Family Support Services cut in the House 1 budget
  • Partial funding of Turning 22 Day/Employment Services
  • Additional funding of waiver services within the Autism Division of DDS
  • Clarifying language to line item 7061-0012 carrying out the Governor’s and Legislature’s intent regarding the DESE/DDS residential placement prevention program;
  • Support of the Commonwealth’s Olmstead Community Integration program.

Yet even with this additional support, many of these programs remain woefully underfunded. A comparison of the budgets from FY 2006 and FY 2011 shows that, among other programs, funding levels have either remained steady or declined for:

  • Day/Employment Programs,
  • Respite/Family Supports, and
  • Turning 22

THE NUMBERS

We ask that the Senate restore funding to these critical DDS and MassHealth services. In light of the effective decrease in funding over the past five years, the restoration of funds will not constitute a boon to these programs. Rather it will provide sufficient funding for these programs to serve only a portion of worthy and eligible individuals and families. Requests are outlined below, followed by a chart of funding levels and a description of each program.

  • Turning 22 (5920-5000) is funded at $5 million, but with 708 students, it requires $8 million total for 2012 and line item language for 2013 to annualize at $19.9 million
  • Family Support (5920-3000) has been cut to $41 million. It should be funded at the FY 2011 level of $46 million.
  • Employment funding (5920-2025) for 2011 Turning 22 students requires an additional $1.7 million for $126 million total.
  • Community Residential Supports (5920-2000) requires an additional $7.75 million for $759.55 million total.
  • Day Habilitation services funded through MassHealth (4000-0700) are slated for a cut of $5 Million. We ask that $5 million be added for this service and an additional $5 Million maintain AFC or adult foster (family) care. Both programs are reimbursable with 50% in federal funds.

Line Item

Description

FY11
Final
(incl. FMAP)

FY12
Governor’s

FY12
House

Request for
FY12
Senate
Ways/Means

DDS

 

 

 

 

 

5920-2000 Community Residential Supports

$728,047,384

$751,797,120

$751,797,120

$759,549,620

5920-2025 Day/Employment Programs

$123,267,971

$123,267,971

$124,267,971

$125,969,796

5920-3000 Respite/Family Support

$46,521,184

$32,592,372

$41,004,298

$46,521,184

5920-5000 Turning 22

$5,000,000

$5,000,000

$5,000,000

$8,000,000

Non DDS

 

 

 

 

4000-0700 MassHealth Day Habilitation

 $2,026,206,633.00

 $2,026,206,633

$2,031,206,633

THE PROGRAMS

The different line items for DDS and MassHealth serve different constituents based on need and family circumstances. Together they comprise a safety net. Highly valued by the federal government, Massachusetts receives 50% federal FMAP reimbursement for almost all of these services.

  1. Turning 22 helps students who need adult services make the cross-over from special education. The $5M is not adequate for year 1 and annualization requires $19.9M. Young people with disabilities who graduate from special education programs across the state may simply drop off the public “radar screen”, and then they AND their families face a nightmarish test of survival and uncertainty. There is no transfer of dollars from local cities or towns or Department of Elementary and Secondary Education. Allocate $8M for T22 and language for $19.9M for 2013.
  1. Family Support/Respite services are for adults and children. In recent years most children have lost use of this program due to cuts. For those with loved ones at home it is an essential support and very cost-effective. In addition to respite or in-home assistance, staff at family support centers provide training, help with planning and give referrals for community resources that can complement public services. Thousands of people are at risk of losing family support services and day supports this year. A reduction of more than 10% on top of the $10 million cut in 2010 mean that families who have an adult son or daughter living at home or those with children who need assistance will have little if any help. Our request addresses only this year’s remaining $5.5 million cut.
  1. The Day/Employment account is utilized by adults who continue to live at home or transitioned through Community First. For those at home, services funded through this line are the main supports an adult receives from the state. It typically gives parents a break for the day or allows them to work. An additional $1.7 million is needed for FY’11 Turning 22 students.
  1. Implementing Community First: this requires the DDS residential line items along with DDS employment/day or MassHealth day habilitation for clinical services. These line items also assist adults who have lived their entire lives with their biological families. There are two community residential line items, one of which utilizes providers or “purchase of service” and one which uses state employees. DDS residential is short $7.75 million for 2012 Rolland (Nurs. Home); day habilitation requires $5M additional in the 4000-0700 account to avoid a nearly 4% cut.
Posted in Arc of Massachusetts Updates, Featured | Leave a comment

Day Hab Rate Victory May Be Short Lived

Day Habilitation services

Governor withdraws rate cut for FY 11, but HWM FY 12 Budget fails to fund

Less than two weeks ago disability advocates were expressing gratitude to the Governor and legislators for canceling proposed FY 11 Mass Health rate cuts for Day Habilitation and Adult Foster Care programs, it appears that the battle is far from over since the House Ways & Means Budget did not include this restoration in its budget report.

Thus the relief of early April may not be carried forth into the next fiscal year starting July 1, 2011, unless the House votes to increase Mass Health funding to prevent the $5 million cut to Day Hab programs and the $5 million cut to AFC programs.

Disability advocates had hoped for a better outcome in the FY 12 HWM budget, noting that State House News press reports in late March reported that HWM Chairman Brian Dempsey had been in talks with Administration officials to cancel the planned FY 11 rate cuts. (The State House News story also noted that Sen. Pat Jehlen had urged SWM Chair Steve Brewer to also support revoking the Mass Health cuts.) Some hoped that those talks were a hint of how the HWM budget would treat the issue in the FY 12 budget.

Hundreds of consumers, family members, direct support professionals and advocates had protested the cuts at February public hearings expressing concern that:

  • Day Hab programs serve many people with complex health and behavioral challenges.
  • funding cuts will reduce essential staff that assist participants with toileting, feeding and repositioning
  • funding cuts will endanger the health and safety of day hab program participants.

Rep. Jim Dwyer (D-Woburn) is sponsoring Amendment 365 to forestall the proposed Day Hab cut for the FY 12 budget.

Disability advocates are hoping that the compelling testimony that convinced state decision makers to cancel the FY 11 rate cuts will convince either the House or Senate to fully restore the Day Hab and AFC accounts.

Posted in ADDP Updates, Arc of Massachusetts Updates, Featured | Leave a comment

Hundreds Board Buses; Over $230,000 Raised to Benefit People with Disabilites

APRIL 11 – All Aboard The Arc! rode its way to success on Sunday.  Six hundred riders from eight regions of the state

Team Disco light's up the stage!

(Merrimac Valley, Cape Cod, Pioneer Valley, Central Mass., Norfolk County, Middlesex County, South Shore and Greater Brockton) raised more than $230,000 to increase awareness of The Arc, an organization that provides support and advocacy for people with intellectual and developmental disabilities across Massachusetts.

The money raised was a collaborative effort, drawing on the grass-roots support of individuals as well as corporate sponsors.  To earn seats on the buses, riders had to collect a minimum of $600; several businesses, through their donations, paid for the buses, refreshments and other costs associated with the event.

Team Disco!

The fundraiser was unique in utilizing a caravan of buses to transport people with disabilities and their families, donors and other supporters to the Hanover Theatre for the Performing Arts in downtown Worcester for a central rally celebrating the abilities of people with disabilities.

Among those addressing the audience were: U.S. Rep. James McGovern, D-Mass.; and former New England Patriots linebacker Steve Nelson and former Baltimore Colts and Boston College lineman Dan Sullivan, who spoke movingly about being a parent of a child with a disability. Jane Boulet Caplice, of the statewide committee, and self-advocate Karen Norton, of the South Norfolk County Arc also addressed the audience.

Another celebrity participating in the event was longtime TV personality Rex Trailer, whose “wagon train” effort in 1961 served as an inspiration

Rex Trailer and Arc of Massachusetts Executive Director Leo Sarkissian

for the All Aboard! bus journey. That year, Trailer, at the time the host of the popular children’s TV program “Boomtown,” led a caravan of horse-drawn wagons from Greenfield to the State House in Boston to highlight the important advocacy work performed by The Arc on Beacon Hill and Capitol Hill.

Team Disco!

Joining in the festivities were musicians, dancers and other performers from throughout the disability community, including the Rainbow Players from Empowerment Through the Arts; the South Shore Conservatory Community Voices; The Arc of the South Shore’s dance troupe, Team Disco; and pianist Melissa Sullivan of Newton.

Dan Rea, host of “NightSide” on WBZ radio, served as the master of ceremonies, rousing the audience and guiding them

Master of Ceremonies, Dan Rea

through the program of speakers and performers.

Team Disco, from The Arc of the South Shore closed the event to a standing ovation. Their performance featured dance routines to smash disco hits of the 70’s including YMCA and Macho Man, by the Village People, as well as Abba’s Dancing Queen, Donna Summer’s Dancing Queen and Its Raining Men, by The Weather Girls.

“The support shown by the All Aboard! participants today and our sponsors will help us to keep on keeping on with our work, which is especially challenging these days in the face of reductions in publicly funded programs for people with disabilities,” said Leo Sarkissian, The Arc of Massachusetts’ executive director, as the event drew to a close. “We look forward to enlisting still more donors to get on the bus with us next year so that we can continue to give voice to the needs of the people we serve.”

New England Patriot great Steve Nelson

For nearly 60 years, The Arc of Massachusetts, which now boasts 19 chapters across the state, has advocated for and assisted tens of thousands of children and adults statewide who have autism, cerebral palsy, Down syndrome and other intellectual and developmental disabilities. The efforts of The Arc have helped build inclusive communities for people with disabilities where they can find personal fulfillment in their schools, workplaces and residences.

In today’s fiscal environment events such as All Aboard the Arc! Become even more important, the need for additional funds and awareness rise as available government funding decreases. This decrease seriously hampers the ability of organizations like The Arc to continue to provide top quality programs and advocacy for our most vulnerable citizens. Those who wish to support the work of The Arc of the South Shore can visit www.arcsouthshore.org and make a gift online or contact The Arc directly at their N. Weymouth office.

The Arc of the South Shore would like to thank some of the generous sponsors who helped to make the event a success including Towne & Co. Architects, Roche Brothers, EMD Serono, S-Bank, and Margarita’s.

Posted in Arc of Massachusetts Updates, Arc of the South Shore, Featured | Leave a comment

Closure Long Overdue

Please don’t slow down “Community First” with institution language in the budget.  Last year’s language will delay closure efforts.  As we reported above, Fernald is costing $1.3 Million per month. Imagine the impact that is having on difficult budget deliberations.  Imagine the impact on families in need.

Massachusetts still has 6 institutions: Templeton, Glavin, Monson, Fernald, Hogan and Wrentham while 11 other states have none (Michigan and Indiana just closed their last ones in the past 16 months.)   Due to historical delays, at Federal court and sometimes in the legislature, we are spending dollars on a number of institutions that are not needed.  Today’s delays are based on

The Arc State House/Policy page has a sub-page on “policy debates” (go to arcmass.org) and the link to Fernald closing has much information.  But here are a few facts to help:

  • Most of the New England states have closed its institutions, one other state has one institution
  • Research shows the trends toward community settings is past debate, see pages 16 & 43 here.
  • Research supports better outcomes in community settings over institutions   See here
  • Despite legal settlements, Massachusetts actually stalled behind other states between 2004-2006 in community I/DD services investment; we declined 2.8 percent when adjusted for inflation; while the country as a whole saw 3 percent growthduring that same period! (data from David Braddock, Richard Hemp, Mary C. Rizzolo, “The State of the States in Developmental Disabilities 2008.” Department of Psychiatry and Coleman Institute for Cognitive Disabilities. The University of Colorado).

“The nation’s census of persons with intellectual and developmental disabilities

living in state-operated institutions has declined steadily from the peak of about 195,000 persons in 1967, to 38,299 today. Forty states have closed or scheduled the closure of one or more of their institutions. Indiana, along with nine other states and D.C.–Alaska, Hawaii, Maine, Minnesota, New Hampshire, New Mexico, Rhode Island, Vermont, and  West Virginia–now operate no state-operated I/DD institutions”. [Michigan added to this list in 2010].  (Executive Summary of Intellectual and Developmental Disabilities Services in Indiana. By David Braddock, Ph.D. and Richard Hemp, M.A.)

Today we need the legislature fully behind us and avoiding any language that restricts Community First movement.  Please support Community First and community services!

 

 

Posted in Arc of Massachusetts Updates | Leave a comment

As House Ways and Means Releases its Budget

As we go to press today, we face devastating community cuts.   We can’t give up on disability supports and services in the midst of a difficult economy.  As a legislator we ask you not to give up on us and we ask our families and friends to keep up the outreach.  Your stories are what informs neighbors as well as decision makers.

Unemployment combined with the nation’s first universal health care law has real costs – no one should be surprised by this fact.  No one is to blame for it but let’s not destroy disability programs, all programs, because of it.  We are not asking for great expansion, just meeting children’s and adults’ human needs.

In light of this, please support “Community First”.  It works for those in the community and we continue to demonstrate that it works for those once in the institutions.  Do not renew or include restrictive language in favor of institutions in this budget (see related story).

This year we see what the delays have cost us in a supplemental budget -keeping Fernald open for a handful of people costs $1.3 Million per month!  The present delay is due to legitimate appeal rights that each person has through DALA (Div. of Administrative Law Appeals).  Two decisions have been rendered thus far both in favor of the Commonwealth.

Imagine what $1.3 Million per month at Fernald buys:

  • 12 months would fund the Family Support cut
  • 12 months would almost address MassHealth shortfalls
  • so on…

We can’t give up on disability supports/services.  The numbers below are in reference to the Gov’s budget. We focus on the following:

  • DDS Family Support/Respite, $13.9 Million in reductions (over 30% of the account, 5920-3000)
  • MassHealth cuts totaling $15 Million that would slash into day habilitation (day clinical services), adult foster care (efficient in home and out of home assistance) and day health- 4000-0007 ($15million in additional $$)
  • DDS residential supports delaying the exit of adults from nursing homes to the community (part of Rolland legal settlement) $7.75 M needed in 5920-2000
  • The family preservation program of DESE-DDS which requires language in 7061-0012 (DESE account) to insure at least $6.5 M is spent on this program
  • DDS Employment supports for those who were served in T22 this year, need $2.7 M in 5920-2025, and
  • Turning 22 for 2012 requires-$8 Million (plus $3 M) and annualization language of $19.9 for FY’2013, 5920-5000

And it doesn’t stop with these, there are other disability and related lines needing restoration.

These supports help individuals with disabilities at different ages, in different situations.  There is no one constituency.  So we are not asking you to help John who may be 2 years old and refuse to assist Rachel who turns 22 this year and needs support.

Remember that the 38,000 constituents who are served through DDS and the long term MassHealth services have no where else to go to be served. There is no local program or school opening its doors to them, but they are all part of our families, our friends and our communities.  Let’s not leave them behind.

Please – Keep the Promise of Community!

Posted in Arc of Massachusetts Updates | Leave a comment